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The Holtzbergs and their Tay-Sachs babies


Among the many details that have emerged about the murders of almost 200 people in Mumbai, including Rabbi Gavriel Holtzberg and his wife, Rivkah, is that two of their children have suffered from Tay-Sachs, a deadly genetic disease.holtzberg.jpg

It's a lipid storage disorder often found among Jews of Eastern European descent. The children become blind and deaf and their muscles atrophy. There is no cure and they die at a young age.

The Holtzbergs had one son who died of the disease and another who is currently being treated for it in an Israeli hospital. Rivkah Holtzberg was pregnant when she was killed. The couple also has a two-year-old son, Moshe, who apparently witnessed the murder of his parents but was rescued by his nanny.

Clearly the couple knew they were carriers, but as Orthodox Jews, they likely believed God commanded them to have many children. It's a devastating dilemma that many of us have to go through to different degrees in our own lives.

There's a Boca Raton-based foundation, the Matthew Forbes Romer Foundation, that assists people with questions about genetic disorders. Click here for more information.

Categories: Family Issues (228), Health (109), Lois Solomon (179)


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About the authors
Gretchen Day-Bryant has a son in high school and a daughter in middle school. She’s lived to tell about the struggles of juggling little kids and work.
Joy Oglesby has a preschooler...
Cindy Kent Fort Lauderdale mother of three. Her kids span in ages from teenager to 20s.
Rafael Olmeda and his wife welcomed their first son in Feb. 2009, and he's helping raise two teenage stepdaughters.
Lois Solomon lives in Boca Raton with her husband and three daughters.
Georgia East is the parent of a five-year-old girl, who came into the world weighing 1 pound, 13 ounces.
Brittany Wallman is the mother of Creed, 15, and Lily, 7, and is married to a journalist, Bob Norman. She covers Broward County government, which is filled with almost as much drama as the Norman household. Almost.
Chris Tiedje is the Social Media Coordinator and the father of a 7-year-old girl, and two boys ages 4 and 3.
Kyara Lomer Camarena has a 2-year-old son, Copelan, and a brand new baby.


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